Parents and Grandparents of Children with Special Needs Should Create a First-Party or or (d)(4)(A) Trust

Parents and Grandparents of Children with Special Needs Have Unique Planning Opportunity

Last Updated: 4/4/2011
When a people with special needs receive money in their own names, or if someone with resources suddenly becomes disabled through an injury or illness, they may be unable to qualify for means-tested government benefits like Supplemental Security Income (SSI) or Medicaid because they have too much money.
Fortunately, people under age 65 who face these unexpected challenges can typically transfer their excess assets into a unique kind of special needs trust, called a first-party or (d)(4)(A) trust, and remain eligible for most kinds of government benefits. Of course, first-party trusts are not perfect planning tools because the trust must contain a provision that allows the government to reclaim the cost of any benefits paid to the trust’s beneficiary
when the beneficiary passes away. (For a primer on first-party special needs trusts, click here.

The payback provision is not the only “catch” that prevents everyone from immediately using this important planning technique. In order for a first-party special needs trust to work, it cannot be created by the person with special needs but by her parent, grandparent, or by a court.

This bizarre requirement has been a part of federal law for years, yet no one really understands why the mandate was ever included in Social Security legislation in the first place. Federal law allows people with special needs to actually transfer their money into the trust on their own; they just can’t create the actual trust instrument! Because many people with severe disabilities are perfectly competent and capable of creating a special needs trust for their own assets, the parent/grandparent/court requirement makes it much more difficult for people with special needs to protect their government benefits, especially if they do not have living parents or grandparents.

Because a court-created first-party special needs trust can take months to establish, parents and grandparents of people with special needs have a unique opportunity to make life much easier for their children or grandchildren by creating a first-party special needs trust while they are still living. Having a first-party special needs trust in place, even if it is not needed when it is initially created, ensures that a beneficiary who does receive a financial windfall in the future can immediately transfer his assets into the trust, avoiding months-long delays and accompanying loss of vital government benefits.

If you are a parent or grandparent of a child with special needs, you should strongly consider establishing this life-long and potentially life-saving trust today. Talk to your special needs planner to see if a first-party special needs trust would be appropriate for your family.


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